This compilation of resources is thanks to the input of many support groups, families and professionals. Our most important source, however, is you. If you have a resource to add to any of our lists or find that something listed here is incorrect or not good for families, please contact us so we can update it for everyone.
Be sure to leave your comments and personal experiences at the bottom of the corresponding resource page. We can all learn from your first-hand knowledge and would love to know about any tips and tricks!